Know AML: Blood Cancer Awareness Month – September 2023
Friday 18 August, 2023Know AML
is the first global education and awareness initiative that provides patients and caregivers with the information, resources, and support they need to deal with acute myeloid leukemia (AML). AML, a rare aggressive cancer of the blood and bone marrow, is the most common form of acute leukemia in adults. Over the years, Know AML has run robust campaigns in September to raise awareness of AML during Blood Cancer Awareness Month (BCAM).
Throughout the year, Know AML has been successful in delivering several cornerstone projects: our AML World Awareness Day campaign on April 21; our Global Network and Ambassador meeting in May; the interactive ambassador workshop for Ambassadors in July – and many more projects to come.
In September 2023, we will continue to campaign, with help from our global network and community, to raise awareness of access to mental health and wellbeing support, its benefits, and why it is important for people with AML and their caregivers to #TalkAML with family and friends. More information, details on how to get involved, and resources can be found here.
“As a Know-AML Patient Ambassador for six years I have personally seen the tremendous change Know-AML has made for families receiving this challenging diagnosis. Medical advances have accelerated during that time, clinicians are more aware of AML specific diagnostic details and personalized medicines have been announced. But it is only with the publication of this news, and the information Know-AML has created for patients and care-givers, that so many patients and families have been helped by these helpful videos and online publications”.
– Ralph Hills, Know AML Co-chair and patient, US
Everyone can make a difference during BCAM by downloading, editing, and sharing our translatable assets, following the Know AML social channels, and using the hashtags #KnowAML and #TalkAML, and watching and sharing our video stories from people with AML and HCPs as they #TalkAML. You can get involved both online and offline and encourage others to get involved too!
Please visit the Know AML website
for more information on the TalkAML campaign, as well as resources and information to support patients and caregivers in the AML community worldwide.
If you have any questions or would like more information, please get in touch via our social channels or via email: ses_knowaml@scientificeducationsupport.com
Further information
Know AML has a dedicated and highly experienced global ambassador group who meet regularly to steer and guide the initiative. This ambassador group consists of patients and caregivers, patient advocates, healthcare professionals, and industry representatives. Their responsibility is to propose awareness initiatives, provide concepts for support and education resources, share their experiences and learnings from advocacy heritage, and endorse materials before circulation among the AML community.
Know AML is brought to you by Scientific Education Support (SES) in collaboration with the Acute Leukaemia Advocates Network (ALAN).
For more information, please visit the SES website. Know AML owes thanks to its supporters: Bristol Myers Squibb
and ABBVIE. For more information on Know AML, please visit: https://know-aml.com/. For all press and media enquiries, please contact: ses_knowaml@scientificeducationsupport.com
Twitter: @Know_AML #KnowAML #TalkAML
Facebook: @KnowAML
Instagram: @KnowAML
LinkedIn: Know AML
Ambassadors:
Agnieszka Wierzbowska – Co-Chair and Physician, University of Lodz, Poland
Amanda Shlosberg – Patient Advocate, CancerCare, United States of America
Claire Saxton – Patient Advocate, Cancer Support Community, United States of America
Lise-lott Eriksson – Patient Advocate, Blodcancerförbundet, Sweden
Rita Christensen – Patient Advocate, LyLe, Denmark
Stacey Koleszar – Patient Advocate, Leukemia & Lymphoma Society, United States of America
Tracey Iraca – Patient Advocate, MDS Foundation, United States of America
Zack Pemberton-Whiteley – Patient Advocate, Acute Leukemia Advocates Network, United Kingdom
Anna Mamwell – Patient, United Kingdom
Lizzie Dean – Patient, United Kingdom
Ralph Hills – Patient, United States of America
Charles Craddock – Physician, Queen Elizabeth Hospital Birmingham, United Kingdom
Gail J. Roboz – Physician, Weill Cornell Medicine, United States of America
Isolda Fernandez – Physician, FUNDALEU, Argentina
Erik Aerts – Specialist Nurse, HNHCP, Switzerland
Global Network:
Cancer Support Community, North America
Slovenian Lymphoma & Leukemia Patient Association, Slovenia
Philippines Acute Leukemia and Lymphoma Network, Philippines
Aplastic Anemia & Myelodysplasia Association of Canada, Canada
Thai Blood Cancer Supporter, Thailand
Fundación Colombiana de Leucemia y Linfoma, Colombia
Hematoonkologia, Poland
Associação de Apoio aos Doentes com Leucemia e Linfoma, Portugal
Leukaemia Care, United Kingdom
Flute of Light, Israel
Asociación Leucemia Mieloide de Argentina, Argentina
Aplastic Anemia & MDS International Foundation, North America
Lyle Foreningen, Denmark
Blodkreftforeningen, Norway
LHRM-MDS Patienten-interessen Gemeinschaft, Germany
Leukaemia & Blood Cancer New Zealand (LBC), New Zealand
Leukemia & Lymphoma Society, North America
Associazione Italiana Contro le Leucemie – Linfomi e Mieloma ONLUS, Italy
Cure Leukaemia, United Kingdom
Polska Koalicja Pacjentów Onkologicznych, Poland
Lymphoma Coalition, Global
Public Organization for Patients with Hematological Diseases, Russia
Patient Empowerment Network, North America
Hematon, Netherlands
MDS Foundation, North America
The White Cell Foundation, Nigeria
Taiwan Bone Marrow Transplantation Association, Taiwan
CancerCare, North America
Korea Blood Disease & Cancer Association (KBDCA), Korea
Asociația Română împotriva Leucemiei (ARIL), Romania
HealthTree Foundation, North America
Blodcancerförbundet, Sweden
Leukämiehilfe RHEIN-MAIN E.V., Germany
Blood Cancer Society Nepal, Nepal
Abrale, Brazil
HematologickyPacient, Slovakia
Association of Cancer Patients in Finland, Finland
Blood & Marrow Transplant Information Network, North America
RunX1 Research Program, Global
Portuguese Leukaemia and Lymphoma Association, Portugal
Life With Challenges, Macedonia
The Myeloma, Lymphoma & Leukaemia Foundation of Barbados, Barbados
K.E.F.I of Athens, Greece
Hrvatska udruga leukemija I limfomi (HULL), Croatia
Blood Cancer UK, United Kingdom
Kraujas, Lithuania
Irish Cancer Society, Ireland
Diagnóza Leukemie, Czech Republic
HEMA, North Macedonia
ACTL, United Kingdom
Distributed by https://pressat.co.uk/